Case 024 Adrenoleukodystrophy
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Case 024 Adrenoleukodystrophy
828 viewsMay 26, 2019
YouTubeDr.Hisham AlKhatib
Adrenoleukodystrophy MRI Brain Case #shorts
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Adrenoleukodystrophy MRI Brain Case #shorts
6 views2 weeks ago
YouTubeDEEP RADIOLOGY
When a VUS was hidden how we confirmed Grandpa had adrenoleukodystrophy #adrenoleukodystrophy
1:06
When a VUS was hidden how we confirmed Grandpa had adrenoleukodystrophy #adrenoleukodystrophy
965 views1 month ago
YouTubeChristie & Ken ALD - No Limits
International Adrenal Disease Awareness Day
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International Adrenal Disease Awareness Day
1 month ago
YouTubeAlex TLC
Advice for newly diagnosed ALD AMN patients #adrenoleukodystrophy #ald #adrenomyleneuropathy
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Advice for newly diagnosed ALD AMN patients #adrenoleukodystrophy #ald #adrenomyleneuropathy
490 views4 months ago
YouTubeChristie & Ken ALD - No Limits
The MRI scare and rapid trip to the US... #adrenoleukodystrophy #ald #rarediseases #mri
1:38
The MRI scare and rapid trip to the US... #adrenoleukodystrophy #ald #rarediseases #mri
1.2K views5 months ago
YouTubeChristie & Ken ALD - No Limits
How my son's diagnosis led to mine.. #adrenoleukodystrophy #ald
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How my son's diagnosis led to mine.. #adrenoleukodystrophy #ald
1K views5 months ago
YouTubeChristie & Ken ALD - No Limits
1:00
Living with Adrenoleukodystrophy: Why I Chose Stem Cell Therapy #stemcell #shorts
923 viewsMay 10, 2025
YouTubeSwiss Medica Clinic
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ADRENOLEUKODYSTROPHY का new trial #ald/AMN trial #GENETIC DISORDER #ALD का नया ट्रायल
56 views4 months ago
YouTubeADRENOLEUKODYSTROPHY(ALD) FAMILIES IN INDIA
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Toe squeeze test to check inflammation..
18 views2 months ago
YouTubeChristie & Ken ALD - No Limits
1:14
A mother son bond over peeing and pooping... #adrenoleukodystrophy #ald
143 views1 month ago
YouTubeChristie & Ken ALD - No Limits
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The Untold Story Behind Maxxine Dupri's Strength.
19 views4 months ago
YouTubeImpaulsivecliper
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Duniaku sedang tidak baik2 saja, begitu cepatnya kondisi EL drop dari yang tadinya luar biasa aktif menjadi drop dengan sangat cepat karena suatu penyakit yang bahkan tidak pernah kudengar sebelumnya pernah ada di dunia ini #sonshine #adrenoleukodystrophy #ALD #XALD #leukodystrophy #leukodystrophyawareness #raredisease #miracleshappen #fyp #indonesia
2.2M viewsFeb 25, 2025
TikTokclara_inge1
3:04
Getting out of the house is a great option on days when my daughter is highly sensory seeking. Driving with the windows down, walking around, these can all help change up the day. #momtok #disability #disabled #disabilitytiktok #disabilityawareness #momsontiktok #specialneeds #parentsoftiktok #grwm #ditl #dayout #momofdisabledchildren #adrenoleukodystrophy #refsumdisease
1.7M viewsJul 11, 2024
TikTokadaptivemama
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Penyakit Adrenoleukodystrophy: Kisah Iman Ramadhani
2.2M viewsAug 25, 2023
TikTokimanramadhanii
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Ujian Berat: Anak Kami Menderita SMA Type 1
489.8K viewsMay 11, 2023
TikTokbaby_qaisar
2:40
Adrénoleucodystrophie : Dépistage précoce pour sauver des vies
24.5K views4 months ago
TikTokelaofficielle
0:15
X-linked Adrenoleukodystrophy (ALD) is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, an insulating membrane that surrounds nerve cells in the brain. It leads to a long-term coma (vegetative state) about 2 years after nervous system symptoms develop. The child can live in this condition for as long as 10 years until death occurs. #genetics #neurologicaldisorder #brain #edu #edutokmotivation #edutok #neurology #disease
110.7K viewsOct 5, 2022
TikTokneurologyminute
1:16
Navigating Night Drives with My Daughter's New Medicine
31.3K viewsJun 24, 2025
TikTokadaptivemama
0:32
Tidak ada orang tua di dunia ini yang mau dititipkan Tuhan anak dengan kondisi spesial tapi jika memang ini jalan Tuhan aku percaya bahwa Tuhan akan mampukan kami orangtua EL untuk merawat EL sampai titik terakhir #ceritamamael #adrenoleukodystrophy #ALD #XALD #leukodystrophy #specialneeds #raredisease #sonshine #miracleshappen #indonesia #fyp
38.5K viewsFeb 27, 2025
TikTokclara_inge1
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