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Lola, 4 ans, est atteinte de Tango2, une maladie génétique rare qui touche 100 enfants dans le monde et une vingtaine en France. 👨‍👩‍👧 Ses parents ont lancé une pétition pour que leur association soit reconnue d’intérêt général afin de défiscaliser une partie des dons de leurs donateur-ices, et accélérer ainsi la recherche pour des traitements. Malheureusement, le gouvernement refuse en raison du faible nombre de patient-es concerné-es par la maladie. ❤️ 🎥 Soutenus par plus de 30 000 personn
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