There’s a lot going on, and I don’t want people to lose hope. We have to stay engaged–learning, writing, calling, advocating. Rest, but don’t quit. They don’t often win their court cases. In ...

Across the U.S., consumers are taking part in a national boycott, also known as a “blackout day,” to protest corporate greed, unfair labor practices, and unethical business behaviors. The goal? To ...

In the past couple of days, the U.S. Department of Education (ED) has been making headlines, and not in a good way. Let’s break down what’s been happening and how it could impact our kids, especially ...

You should tell the media about this! It’s a really common piece of IEP advice. And, I get it. Our kids are treated horribly sometimes. They get bullied, sometimes even by school staff. Kids are ...

I call myself a public education supporter. I advocate, I lobby, I educate myself on the issues. I believe public education benefits all of society, not just our own kids. I want it to succeed. But ...

A Brief History of the Bill and Its Impact on Medicaid On February 25, 2025, the House of Representatives narrowly passed a Republican budget resolution with a 217-215 vote. This resolution proposes a ...

Since my last article about my son and the Medicaid cuts, I’ve heard from a lot of supportive people. I’ve also heard from people who clearly have no idea how Medicaid works, what it does, or why ...

A new proposed budget in Congress includes over $880 billion (yes with a B) in Medicaid cuts over 10 years. The justification for the cuts includes reasons like “unnecessary usage” and fraud.” My son ...

Every parent wants their child to thrive. But for millions of families raising children with disabilities, that dream hinges on one essential program: Medicaid. From covering life-saving therapies to ...

Today, we’re diving into something that has become a buzzword in education but can be a nightmare for our kids with IEPs: growth mindset. If you’ve heard teachers or IEP team members dismiss your ...

My son Kevin, through no fault of his own, was born with a chromosome disorder that significantly impacts his health and his life. I hate that our current system requires me to constantly describe him ...

Last week, the NIH and FDA announced that they are cancelling Rare Disease Day for 2025. Rare Disease Day (held annually on the last day of February) is a global movement that raises awareness for the ...